The Delphi Research Group at Carnegie Mellon University (CMU), in partnership with Facebook, has conducted the COVID Symptom Survey to better understand the spread of COVID-19 and its effects on public health and well-being. This may help improve our local and national responses to the pandemic and our understanding of how it has affected society.
De-identified individual survey responses can be made available to researchers associated with universities or non-profit organizations. To request access to the data please submit the information requested in Facebook’s page on obtaining data access, which sets out the basic conditions and provides a form to request access. An international version of the COVID Symptom Survey is conducted by the University of Maryland (UMD) and access can be requested through the same form.
After completing the form, staff from Facebook and CMU will be in contact to guide you through the rest of the process. They will provide data use agreements for your institution to sign, and will also request a copy of your Institutional Review Board approval to verify you have ethical approval to conduct the research. If you have questions about the process, or your IRB needs information about the survey for their review, contact us at firstname.lastname@example.org.